I thought I should probably do a blog post, because I have received some concerned emails & comments.
Abiola, thanks so much for your kind email. I read it at one of the worst times during my absence from my blog. I still have a ton of emails to read... see the picture? That's a screenshot of my phone.
I stopped blogging recently, because of a few reasons. I thought I'd give y'all an update about my crazy life.
What's been happening in our family?
1. Keyboard and Mouse
I spilled coffee on my keyboard... and mouse, while I was writing a guest post about Autism Wandering. I cleaned my keyboard, but had to replace my mouse. Took me a week just to get around to buying a new one.
2. My Grandma was in the Hospital
My grandma who is immobile, suffered from severe burns on her face, neck, shoulder, ears about a month ago. It was really bad, if she would have lived alone... she would have burned to death. Thankfully, my mom lives with her and was home at the time.
She had to have a skin graft done. She ended up in the ICU at the hospital for a while, because she has COPD and was having respiratory issues. She is currently in a nursing home for rehabilitation therapy.
3. I thought my Dad was going to die.
My dad has been battling a condition that affects his intestines, they had become infected and had a large abscess. This past Winter, he had surgery that removed part of his intestines... but he was supposed to have another surgery to remove more. Medical Insurance issues delayed his surgery.
He has been in severe pain since his last surgery and finally went to the emergency room. Turns out, they had to do the surgery as soon as possible. There are always risks associated with surgery, of course. After my dad's surgery, he was put into a sedated coma because they couldn't stabilize his breathing, he couldn't breath on his own. He started to have heart failure. He was under sedation for about a week. I thought my dad was going to die....
He is better now, in a nursing home for rehabilitation therapy. He is in a lot of pain, and his intestines aren't put back together. He has a colostomy bag that he will have for the next 6-12 months. At that time, he should go back to have his intestines put back together, basically. As of right now, he is refusing to go back.
4. My mom totalled her car in an accident.
This happened when my dad was in the hospital in a coma. My mom drives my sister to & from work each day. My sister's car has been sitting there unable to drive, because someone had drilled into her gas tank and slashed her tires.
I had to step in and help with getting my sister to & from work, and help with getting my mom the places she had to go. Thing is... I live in the West Side of our city, they all live on the East Side. My sister's work is about 30 minutes from my house... Anyways, my sister's car was fixed yesterday and my mom will be borrowing it.
My house was recently insulated. Apparently, my whole first level of my home had NO insulation. So... that's why my house was always so cold and drafty in the Winter. I had to empty out my master closets. Insulating a house is a messy job, the insulators managed to coat my entire bedroom in insulation, as well as all throughout my house.
Now, I have been cleaning EVERYTHING. Insulation makes anyone itchy, because of the fiberglass in it. I'm allergic to insulation, so I've been a walking allergic reaction. Hives, swelling, etc. Just horrible. Thank God for Benadryl...
6. Marcus has been home, gone, home, gone...
In the mix of everything else horrible, Marcus was working out of town. He came home for about 2 days, then he'd leave again for work.
He's currently working in Alaska for a while. This is a photo he sent to me... So beautiful...
7. Fourth of July
Fourth of July came and went. Had a cook-out with a few people. Skipped fireworks downtown because I didn't think Cade would do well with all that commotion. Went to a friend's house for smaller fireworks.
Cade did okay through the whole 'firework thing' until the "Grand Finale". He covered his ears and hid behind a trashcan because it was too much. I'm really glad I didn't take the boys downtown...
8. Appointments, Appointments, Appointments...
In addition to the usual therapy appointments, I had a behavioral specialist and a psychologist come to my home. This was rather disappointing. This was their advice, "You are doing everything right. As far as public... we suggest not taking him out. We wouldn't take a child like Cade out in public."
WHAT? That's the worst advice I have ever been given in regards to my son. Thanks for nothing... To be honest, it was like they killed our HOPE.
Behaviorally, Cade has been regressing and becoming more aggressive. I assumed that there was another approach or tactic or SOMETHING... ANYTHING.... that I could change or do that would help him. For them to tell me that I was doing everything right should feel like a compliment, but it doesn't. It feels like a slap in the face that things aren't going to get better.
As far as them suggesting I not take Cade out in public, what is wrong with them? He is a HUMAN, and I will NOT keep my son confined to our home because society doesn't understand him. Everyone else can continue to judge us and make their rude remarks... I don't care, doesn't bother me....
9. Cade is allergic to Mosquitoes.
Again, thank God for benadryl...
10. Cas outgrew his food allergies! He can now have milk and soy.
11. I finally painted my nails...
It's been MONTHS since I painted them. Not the greatest paint job. Really horrible... lol Oh well...